Some people who volunteer for research want to know what happens with the study after their participation. This section provides information about participant communication follow-up.
In the spirit of building relationships with study volunteers, you may want to share the findings of your research with study volunteers. Sharing study findings can increase communication between volunteers and clinicians, increase volunteer satisfaction in their study participation, and lead to greater public understanding of research and willingness to participate in research.
Volunteers should always have the option of whether to learn the results, with a clear option to deny knowing the results. Many volunteers do not wish to learn the results of the study they’ve participated in.
If you are conducting a clinical trial for advanced cancer or other advanced disease, or if the study participant has passed away, you may want to ask the next of kin if they would like to be informed of study findings.
What is considered follow-up?
If you have questions about the content on this page, contact the MICHR Participant Recruitment Program at firstname.lastname@example.org.